Updates from Carlyn Lenfestey

Why Does Someone With Dementia Try to Go to Work?

Why Does Someone With Dementia Try to Go to Work?

Carlyn Lenfestey Dementia, Dementia and Behaviors
My grandfather Steve spent years getting dressed every morning for a store that had burned down before I was born. Everyone around him, including me, called it confusion. It took most of my career working with dementia caregivers and their families before I understood he wasn’t confused. He knew exactly where he was going.
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A New Podcast for Dementia Caregivers: Introducing Navigating Dementia

A New Podcast for Dementia Caregivers: Introducing Navigating Dementia

Carlyn Lenfestey Dementia
Navigating Dementia is a new podcast for dementia caregivers, families, and professionals living the daily reality of dementia care. Hosted by physical therapist and dementia care specialist Carlyn Lenfestey, each episode uses the Wheel of Function Framework to help you understand what a behavior is really telling you, before you decide what to do about it. The trailer is live now.
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When the Steps Get Lost: The Cognitive Spoke and Dementia Activities

When the Steps Get Lost: The Cognitive Spoke and Dementia Activities

Carlyn Lenfestey Daily Routines & Activities, Dementia and Behaviors
Memory loss gets all the attention in dementia care, but it is rarely the only thing breaking down. Attention, problem-solving, communication, and sequencing all shape whether a person with dementia can start, follow, and finish an activity. The Cognitive Spoke of the Wheel of Function Framework™ gives caregivers and care professionals a way to see what is actually happening before labeling someone as "no longer interested." Part 5 of a six-part series on activities and the Wheel of Function Framework™.
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The Physical Spoke: Why Pain Is Shutting Down Dementia Activities

The Physical Spoke: Why Pain Is Shutting Down Dementia Activities

Carlyn Lenfestey Daily Routines & Activities, Dementia and Behaviors
A person with dementia cannot always say where it hurts. But pain, fatigue, medication side effects, and physical discomfort will all show up in behavior before an activity begins. The Physical Spoke of the Wheel of Function Framework™ gives you a pre-activity physical scan and the clinical thinking to know what to do when you find something.There is a moment that happens more often than most people realize.The sensory environment is dialed in. The activity is familiar and appropriate. The time of day is right. Everything that should be in place is in place. And the person still refuses. They pull away, turn their face, push the materials aside, or simply shut down before anything begins.When this happens, the question most caregivers ask is: what is wrong with them today?The better question is: where is the pain?Part 4 of this series focuses on the Physical Spoke of the Wheel of Function Framework™. Of all five spokes, this one is the most consistently overlooked and the most immediately treatable when it is identified. Pain, fatigue, medication side effects, positioning, strength, and balance all shape what the body can and cannot do in a given moment. When any of these are off, engagement becomes nearly impossible regardless of how well everything else is set up.This post will walk through each of those physical factors, explain how dementia changes the way they present, and give you a practical pre-activity physical scan you can run in under two minutes before any activity begins.
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What Your Senses Are Telling You: The Sensory Spoke and Dementia Activities

What Your Senses Are Telling You: The Sensory Spoke and Dementia Activities

Carlyn Lenfestey Daily Routines & Activities, Dementia and Behaviors
Before you introduce any activity to someone with dementia, the brain is already processing everything in the room. The Sensory Spoke of the Wheel of Function Framework™ helps caregivers and care professionals identify when sensory overload or underload is shutting down engagement, and what to change first. Part 3 of a six-part series on activities and the Wheel of Function Framework™.
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When Emotions Drive the Behavior: The Emotional Spoke and Dementia Activities

When Emotions Drive the Behavior: The Emotional Spoke and Dementia Activities

Carlyn Lenfestey Daily Routines & Activities, Dementia and Behaviors
When someone living with dementia pushes away an activity, refuses without explanation, or sits through something without really connecting, the answer is rarely about the activity itself. It is almost always about what is happening emotionally first. Here is how to read those signals and what to do about them.
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The Best Activities for Someone with Dementia Who Won’t Engage

The Best Activities for Someone with Dementia Who Won’t Engage

Carlyn Lenfestey Daily Routines & Activities, Dementia and Behaviors
Most activity advice for dementia caregivers starts in the wrong place. The Wheel of Function Framework™ gives caregivers and care professionals a clinically grounded way to read what the brain needs before any activity begins. Learn what actually works when nothing else has.
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They Told Me Everything: A Memorial Day Reflection From a Physical Therapist

They Told Me Everything: A Memorial Day Reflection From a Physical Therapist

Carlyn Lenfestey Dementia
In 11 years at the Maine Veterans’ Home, physical therapist Carlyn Lenfestey witnessed something that still catches her off guard: veterans who could not tell her what year it was could describe the color of the water at Omaha Beach at first light. This Memorial Day, she writes about the neuroscience behind why emotional memories often outlast dementia, and what that understanding means for everyone who cares for someone living with it.
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ABOUT THE AUTHOR
Carlyn Lenfestey, PT, MPT, CDP, CADDCT, is a licensed physical therapist with 25 years of clinical experience and 15 years specializing in dementia care. She is the founder of A Better Way: Dementia Care Solutions, LLC, the creator of the Wheel of Function Framework™, and the host of the podcast, Navigating Dementia.

DISCLAIMER
The information provided in this blog is for educational purposes only and should not be considered medical advice. Always consult with a doctor or a licensed physical therapist before starting any new exercise routine, using assistive devices, or following the recommendations mentioned. Every individual's needs are different, and professional guidance is essential to ensure safety and appropriateness of care.

Meet Carlyn Lenfestey

Carlyn is a dedicated physical therapist with over 20 years of experience, holding a Bachelor’s degree in Health Sciences and a Master’s degree in Physical Therapy from the University of New England. For more than a decade, she has been a Certified Dementia Care Practitioner and Trainer. Her journey into dementia care began when her grandfather was diagnosed, and she watched her grandmother take on the role of caregiver. Over the years, as her remaining three grandparents were also diagnosed, Carlyn developed a deep commitment to helping caregivers.

Having cared for countless patients with dementia, Carlyn understands the struggles both personal and professional caregivers face. She has provided training and support to both groups, ensuring that caregivers are knowledgeable, equipped, and empowered. Driven by the belief that people with dementia deserve lives filled with joy and purpose, Carlyn is passionate about creating a better way to care for and support both individuals with dementia and those who care for them.


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