Why Does Someone With Dementia Try to Go to Work?
My grandfather Steve spent years getting dressed every morning for a store that had burned down before I was born. Everyone around him, including me, called it confusion. It took most of my career working with dementia caregivers and their families before I understood he wasn’t confused. He knew exactly where he was going.
Read more...A New Podcast for Dementia Caregivers: Introducing Navigating Dementia
Navigating Dementia is a new podcast for dementia caregivers, families, and professionals living the daily reality of dementia care. Hosted by physical therapist and dementia care specialist Carlyn Lenfestey, each episode uses the Wheel of Function Framework to help you understand what a behavior is really telling you, before you decide what to do about it. The trailer is live now.
Read more...Retrogenesis in Dementia Care: How to Actually Use the Theory, Not Just Explain It
Retrogenesis can help you make better caregiving decisions in real time. This bonus post shows how to match communication, activities, and environment to the stage in front of you.
Read more...Lost in a Familiar Room: The Environmental Spoke and Dementia Behavior
The room itself may be driving the confusion, agitation, or withdrawal you are seeing. Learn how lighting, noise, clutter, and layout shape dementia behavior—and what to change tonight.
Read more...When the Steps Get Lost: The Cognitive Spoke and Dementia Activities
Memory loss gets all the attention in dementia care, but it is rarely the only thing breaking down. Attention, problem-solving, communication, and sequencing all shape whether a person with dementia can start, follow, and finish an activity. The Cognitive Spoke of the Wheel of Function Framework™ gives caregivers and care professionals a way to see what is actually happening before labeling someone as "no longer interested." Part 5 of a six-part series on activities and the Wheel of Function Framework™.
Read more...The Physical Spoke: Why Pain Is Shutting Down Dementia Activities
A person with dementia cannot always say where it hurts. But pain, fatigue, medication side effects, and physical discomfort will all show up in behavior before an activity begins. The Physical Spoke of the Wheel of Function Framework™ gives you a pre-activity physical scan and the clinical thinking to know what to do when you find something.There is a moment that happens more often than most people realize.The sensory environment is dialed in. The activity is familiar and appropriate. The time of day is right. Everything that should be in place is in place. And the person still refuses. They pull away, turn their face, push the materials aside, or simply shut down before anything begins.When this happens, the question most caregivers ask is: what is wrong with them today?The better question is: where is the pain?Part 4 of this series focuses on the Physical Spoke of the Wheel of Function Framework™. Of all five spokes, this one is the most consistently overlooked and the most immediately treatable when it is identified. Pain, fatigue, medication side effects, positioning, strength, and balance all shape what the body can and cannot do in a given moment. When any of these are off, engagement becomes nearly impossible regardless of how well everything else is set up.This post will walk through each of those physical factors, explain how dementia changes the way they present, and give you a practical pre-activity physical scan you can run in under two minutes before any activity begins.
Read more...What Your Senses Are Telling You: The Sensory Spoke and Dementia Activities
Before you introduce any activity to someone with dementia, the brain is already processing everything in the room. The Sensory Spoke of the Wheel of Function Framework™ helps caregivers and care professionals identify when sensory overload or underload is shutting down engagement, and what to change first. Part 3 of a six-part series on activities and the Wheel of Function Framework™.
Read more...When Emotions Drive the Behavior: The Emotional Spoke and Dementia Activities
When someone living with dementia pushes away an activity, refuses without explanation, or sits through something without really connecting, the answer is rarely about the activity itself. It is almost always about what is happening emotionally first. Here is how to read those signals and what to do about them.
Read more...The Best Activities for Someone with Dementia Who Won’t Engage
Most activity advice for dementia caregivers starts in the wrong place. The Wheel of Function Framework™ gives caregivers and care professionals a clinically grounded way to read what the brain needs before any activity begins. Learn what actually works when nothing else has.
Read more...They Told Me Everything: A Memorial Day Reflection From a Physical Therapist
In 11 years at the Maine Veterans’ Home, physical therapist Carlyn Lenfestey witnessed something that still catches her off guard: veterans who could not tell her what year it was could describe the color of the water at Omaha Beach at first light. This Memorial Day, she writes about the neuroscience behind why emotional memories often outlast dementia, and what that understanding means for everyone who cares for someone living with it.
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