The Caregiver Behind the Care Plan: What Families Have Been Trying to Tell Us About Dementia Care
Researchers and healthcare leaders are finally beginning to talk more openly about the daily realities of dementia caregiving. But for many families, these conversations are long overdue.In this article, Carlyn Lenfestey, physical therapist and creator of the Wheel of Function Framework, explores why caregivers often recognize changes in function long before healthcare systems do, and why behavior in dementia should be understood as a signal instead of simply a problem to manage.Drawing from both personal family experience and years of clinical work in dementia care, this post examines:why dementia care is about more than memory losshow sensory overload, emotional regulation, and changing brain function affect daily lifewhy caregivers need interpretation tools, not just instructionswhat current dementia research is beginning to recognize about caregiver insight and real-world supportIf you have ever felt like you were trying to navigate dementia without a roadmap, this article will help you understand why.
Read more...What the New Alzheimer's Drug Means for Family Caregivers: A Straight Answer
The FDA has approved an at-home injectable form of Leqembi for early Alzheimer's disease. But what does that actually mean for the caregiver managing a full day of dementia care? A licensed physical therapist and dementia care specialist attended a caregiver conference this week where a neurologist overseeing Leqembi infusions addressed the room directly. This is the straight answer caregivers, professionals, and supporters need right now, including who qualifies, what the process looks like, and why the drug and the daily caregiving are two parallel tracks that both still matter.
Read more...Part 5: How to Stop Dementia Mealtime Meltdowns Before They Start
Prevent the mealtime meltdown before it starts. In the final part of our series, we explore how to master the Environment and Emotional spokes of the Wheel of Function™ to ensure peace at the table.
Read more...Part 4: Dementia and Finger Foods: How to Maintain Independence When Utensils Fail
When a fork becomes a barrier, it is time to change the tactic, not the goal. Learn how to use finger foods and texture modification to preserve dignity and nutrition in mid-to-late stage dementia.
Read more...Part 3: Stop the Mealtime Battle- How to Support Eating When Dementia Gets
Stop fighting the symptoms and start repairing the wheel. This guide provides practical, stage-aware strategies to fix the physical, sensory, and cognitive "misfires" that disrupt dementia mealtimes using the Wheel of Function Framework™.
Read more...Part 2: How Dementia Affects Eating at Every Stage
Dementia is a progressive journey of brain failure. In Part 2 of our series, we map the Wheel of Function™ to the early, middle, and late stages of the disease to help you stay ahead of mealtime challenges.
Read more...Part 1: Why the Table is the Ultimate Stress Test in Dementia Care
Mealtime is the most complex task we ask a person with dementia to perform. Explore why the kitchen table is the "ultimate stress test" and learn how the Wheel of Function Framework™ can help you identify and repair the specific obstacles stopping the meal.
Read more...Alzheimer’s Speaks Podcast: Why Dementia Behaviors Make Sense Once You Understand the Brain
If you’re caring for someone with dementia, you’ve likely had this thought:“This just doesn’t make any sense.”Maybe they’re asking the same question over and over.Maybe they’re refusing care they clearly need
Read more...Why I Teach the NCCDP Dementia Care Seminar: And Why It Matters More Than You Think
My grandfather had the brightest blue eyes. Then dementia came. Years later as a physical therapist I realized my clinical training hadn't prepared me for dementia care either. Here's why I became a certified NCCDP trainer and why this seminar changes everything.
Read more...When Simple Decisions Stop Feeling Simple: How Dementia Affects Problem Solving
Everyday decisions like choosing clothes, cleaning up a spill, or figuring out the next step in a task rely on the brain’s ability to solve problems. In dementia, these executive brain functions can change, making even simple situations feel confusing or overwhelming. In this post, we break down why problem solving becomes difficult and how caregivers can reduce frustration by supporting the brain differently.
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