Researchers and healthcare leaders are finally beginning to talk more openly about the daily realities of dementia caregiving. But for many families, these conversations are long overdue.
In this article, Carlyn Lenfestey, physical therapist and creator of the Wheel of Function Framework, explores why caregivers often recognize changes in function long before healthcare systems do, and why behavior in dementia should be understood as a signal instead of simply a problem to manage.
Drawing from both personal family experience and years of clinical work in dementia care, this post examines:
- why dementia care is about more than memory loss
- how sensory overload, emotional regulation, and changing brain function affect daily life
- why caregivers need interpretation tools, not just instructions
- what current dementia research is beginning to recognize about caregiver insight and real-world support
If you have ever felt like you were trying to navigate dementia without a roadmap, this article will help you understand why.
Caregiving isn’t always about love—it can be about duty, devotion, or simply doing what needs to be done. But even in the hardest moments, small acts of care hold meaning. From shared routines to moments of laughter, finding joy in everyday caregiving can bring balance and purpose to your role. Discover simple ways to cherish these moments and recognize the value in what you do.
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Journaling is a simple yet powerful way for dementia caregivers to prioritize their well-being amidst the daily demands of caregiving. Whether you’re reflecting on challenges, documenting moments of gratitude, or setting personal goals, journaling offers a safe space to process emotions, reduce stress, and rediscover yourself. Explore how practices like gratitude journaling and tools like 365 Days of Care: A Reflection Journal for Dementia Caregivers can help you navigate your caregiving journey with clarity, resilience, and peace.
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Caring for someone with dementia is a full-time commitment that can leave little time for yourself. However, finding simple and practical self-care strategies is vital to avoid burnout. This blog post shares effective, easy-to-implement self-care tips designed for busy caregivers so you can recharge while still fulfilling your caregiving role.
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Embarking on a caregiving journey can be overwhelming, but educating yourself about dementia is one of the most powerful tools you can possess. Understanding the specific type of dementia affecting the person you care for is crucial for providing effective support. This guide offers valuable resources, from insightful books to online support groups, to help you navigate the complexities of dementia care with confidence and compassion. Join our community for ongoing support and access tools that empower your caregiving experience.
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