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A New Podcast for Dementia Caregivers: Introducing Navigating Dementia
Navigating Dementia is a new podcast for dementia caregivers, families, and professionals living the daily reality of dementia care. Hosted by physical therapist and dementia care specialist Carlyn Lenfestey, each episode uses the Wheel of Function Framework to help you understand what a behavior is really telling you, before you decide what to do about it. The trailer is live now.
Read more...Why a Busy Room Can Make Dementia Symptoms Look Worse Than They Are.
Why can someone manage just fine at her own kitchen table, but seem to lose the ability to eat once she's in a busy dining room? Carlyn Lenfestey, PT, MPT, CDP, CADDCT, explains the environmental spoke of the Wheel of Function Framework™, the fifth and final spoke, which asks what's happening around a person, not just within them. This post walks through the everyday places, a busy room, a dim bathroom, a crowded shirt drawer, that quietly ask more of a changing brain, and makes the case that care partners are part of that environment too, in their voice, their pace, and their rush.
Read more...Dementia and Cognition: Why Everyday Tasks Become Harder
Why does breaking a task into simple steps sometimes make it harder for someone with dementia, not easier? Carlyn Lenfestey, PT, MPT, CDP, CADDCT, explains the cognitive spoke of the Wheel of Function Framework™, the driver of function that decides how much a person's brain can actually take in and act on at once. Using a story from her years as a physical therapist, this post shows why more verbal instructions can overload a changing brain instead of helping it, and what to try instead, starting with a single item handed over instead of six laid out on the bed
Read more...Why Physical Function in Dementia Isn't Just About Strength
Why can someone with dementia get out of a chair just fine one moment and seem unable to the next? Carlyn Lenfestey, PT, MPT, CDP, CADDCT, explains the physical spoke of the Wheel of Function Framework™, the idea that physical ability in dementia is never fixed, it moves with pain, fatigue, the setup of a room, and how much help shows up in that moment. This post uses a story from her years in dementia care to show why "he did it this morning" doesn't mean "he can do it tonight," and what changes once a caregiver starts asking what's different about the moment instead of the person.
Read more...Why Dementia Behavior Is Never Just About the Task
Why does someone with dementia suddenly get angry, resist a shower, or insist on seeing a mother who died years ago? Carlyn Lenfestey, PT, MPT, CDP, CADDCT, explains the emotional spoke of the Wheel of Function Framework™, the idea that behavior is never just a response to the task in front of a person, it is also a response to what they are feeling underneath it. This post uses a story from her years as a physical therapist to show how fear, anger, and grief change what someone with dementia is able to do, and what shifts when a caregiver responds to the feeling instead of correcting the facts.
Read more...Why Dementia Behavior Doesn't Make Sense (Until You Look at the Senses)
A resident kept falling until his physical therapist realized his legs were never the problem, his brain could no longer tell his maroon bedspread from the maroon wall behind it. In this piece, Carlyn Lenfestey, PT, MPT, CDP, CADDCT, uses that story to unpack the sensory spoke of the Wheel of Function Framework™, and why behaviors like refusing a shower, seeming to ignore you, or pulling away from touch are often the sensory system trying to communicate. You'll learn what to watch for and what actually helps.
Read more...Why It Took Me Ten Years to Build the Wheel of Function Framework™
It took Carlyn Lenfestey, PT, MPT, CDP, CADDCT, almost ten years to turn a decade of scattered dementia training into one usable system, the Wheel of Function Framework™. This post tells the real story behind it, from a course in Nashville to a bicycle wheel demonstration to the question that finally connected everything. If dementia information has ever felt like too many disconnected pieces, this is how one clinician put them back together.
Read more...Why Dementia Strategies Stop Working (And What to Ask Instead)
When a dementia care strategy stops working, the problem usually isn't the strategy, it's that the real cause of the behavior was never identified. Redirecting, distracting, validating, and reassuring only work when they match what's actually happening, and the same behavior, like refusing a shower, can come from very different causes. This post walks through the one question to ask before any strategy: what's actually going on right now?
Read more...Why Does Someone With Dementia Try to Go to Work?
My grandfather Steve spent years getting dressed every morning for a store that had burned down before I was born. Everyone around him, including me, called it confusion. It took most of my career working with dementia caregivers and their families before I understood he wasn’t confused. He knew exactly where he was going.
Read more...They Told Me Everything: A Memorial Day Reflection From a Physical Therapist
In 11 years at the Maine Veterans’ Home, physical therapist Carlyn Lenfestey witnessed something that still catches her off guard: veterans who could not tell her what year it was could describe the color of the water at Omaha Beach at first light. This Memorial Day, she writes about the neuroscience behind why emotional memories often outlast dementia, and what that understanding means for everyone who cares for someone living with it.
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