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The Different Stages of Dementia and What to Expect
Dementia is a progressive condition, meaning it worsens over time. Understanding the different stages can help caregivers provide the best care and prepare for changes along the way. While dementia affects everyone differently, it generally follows a pattern of cognitive decline. The most commonly used model divides dementia into three stages (early, middle, and late), while another breaks it into seven stages for a more detailed view.
No matter which model you use, recognizing the signs of each stage allows you to adjust care, routines, and support. Let’s explore what to expect at each stage and how to best support the person you care for.

Early-Stage Dementia (Mild Dementia)

In the early stage, a person may still function independently but might experience mild cognitive changes that impact daily life. These changes may be subtle, and many people mistakenly attribute them to normal aging.

Common Symptoms:

  • Forgetting names or recent conversations
  • Difficulty finding the right words
  • Misplacing items more often
  • Struggling with organization or planning
  • Feeling confused in new or unfamiliar settings
  • Increased anxiety, depression, or mood changes

Caregiver Tips:

  • Encourage the person to stay active and engaged in hobbies they enjoy.
  • Support memory by using calendars, reminder notes, and routine schedules.
  • Be patient and avoid correcting or arguing when forgetfulness occurs.
  • Gently assist with organizing tasks without taking over completely.

Middle-Stage Dementia (Moderate Dementia)

This is the longest stage and can last for several years. Cognitive decline becomes more noticeable, and the person will need more assistance with daily activities.

Common Symptoms:

  • Increased confusion and forgetfulness
  • Difficulty recognizing family and friends
  • Trouble following conversations or instructions
  • Wandering or getting lost in familiar places
  • Sleep disturbances or sundowning (increased confusion in the evening)
  • Changes in behavior, such as agitation, aggression, or withdrawal
  • Needing help with personal care (dressing, bathing, etc.)

Caregiver Tips:

  • Keep a consistent daily routine to reduce confusion.
  • Use visual cues and simple step-by-step instructions.
  • Offer choices but limit them to avoid overwhelming the person.
  • Ensure the home is safe by removing fall hazards and installing grab bars.
  • Stay calm and reassuring when behaviors become challenging.

Late-Stage Dementia (Severe Dementia)

In this final stage, cognitive abilities are significantly affected, and the person will require full-time care. Physical health also declines, affecting mobility, swallowing, and immune function.

Common Symptoms:

  • Inability to communicate verbally or limited speech
  • Difficulty eating and swallowing
  • Significant memory loss, including difficulty recognizing loved ones
  • Loss of mobility, leading to an increased risk of falls or being bedridden
  • Increased vulnerability to infections, such as pneumonia

Caregiver Tips:

  • Focus on comfort and dignity in care.
  • Provide soft foods or thickened liquids if swallowing becomes difficult.
  • Use gentle touch, music, or familiar scents to provide comfort.
  • Consider professional hospice or palliative care support.
  • Take breaks and seek caregiver support to avoid burnout.

Final Thoughts

Understanding the stages of dementia helps caregivers anticipate changes and provide the right level of support. While the journey can be challenging, being prepared allows for better care, stronger connections, and more moments of joy along the way.

Next Steps
If you need personalized guidance on creating a care plan, consider our 1:1 caregiver coaching services. Let’s navigate this journey together. Schedule a consultation today!

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Disclaimer
The information contained in this blog post is for general educational and informational purposes only and should not be construed as legal advice, financial advice, health advice, or medical advice. The information provided is not a substitute for advice from a qualified professional who is aware of the facts and circumstances of your individual situation. We expressly recommend that you seek advice from a professional familiar with your specific situation.

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Meet Carlyn Lenfestey

Carlyn is a dedicated physical therapist with over 20 years of experience, holding a Bachelor’s degree in Health Sciences and a Master’s degree in Physical Therapy from the University of New England. For more than a decade, she has been a Certified Dementia Care Practitioner and Trainer. Her journey into dementia care began when her grandfather was diagnosed, and she watched her grandmother take on the role of caregiver. Over the years, as her remaining three grandparents were also diagnosed, Carlyn developed a deep commitment to helping caregivers.

Having cared for countless patients with dementia, Carlyn understands the struggles both personal and professional caregivers face. She has provided training and support to both groups, ensuring that caregivers are knowledgeable, equipped, and empowered. Driven by the belief that people with dementia deserve lives filled with joy and purpose, Carlyn is passionate about creating a better way to care for and support both individuals with dementia and those who care for them.


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